UK SMA Patient Registry

This registry is for patients in the United Kingdom and Ireland with Spinal Muscular Atrophy (SMA).

Currently, there are 738 patients in this registry.

Coordinated by:

The John Walton Muscular Dystrophy Research Centre Newcastle University The Newcastle upon Tyne Hospitals NHS Foundation Trust

Affiliated to:

Adult SMA REACHSMA REACH

TREAT-NMD MRC Center for Neuromuscular Diseases